ME Action UK
TBA
ME Association
ME Association reference information:
ME Local Network (MELN)
The ME Local Network (MELN) represents and is steered by Local ME Support Groups across the UK.
ThereForME
#ThereForME is a campaign founded in 2024 by Karen Hargraves and Emma Gore-Lloyd, two carers for partners with very severe Myalgic Encephalomyelitis (ME) /Long Covid. They were joined shortly after forming by Oonagh Cousins, a former UK Olympic Rowing candidate who was struck down by Long Covid between 2020 and 2021 when the Olympics were postponed due to the ongoing pandemic. The campaign is supported by 23 organisations and smaller initiatives supporting people with ME/ and Long Covid.
#ThereForME has been a very powerful voice for people with ME and Long Covid, and hosts a website on Substack here: