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Guidelines | ME Summaries | Movies | Videos
Professor Deepa Mann-Kler Director & Producer – Introduces the Discover M.E. Film
Professor Deepa Mann-Kler Director & Producer introduces an award winning 6-minute, animated video that shares the voices of, and the insights into, the lives of 6 people living with Myalgic Encephalomyelitis in Northern Ireland. It places the viewer into real life scenarios that are normally never seen, heard or experienced. This narrows the gap between an individual’s preconceived beliefs and real personal experience. It can be viewed via a 3D, virtual reality headset for maximum experience (directly arranged by contacting the Charity), or as a normal 2D video via this YouTube link.
Produced between Hope 4 ME & Fibro Northern Ireland, Silverink, and Neon. To date, it has won 4 international short film awards.
Discover M.E. Film (no Introduction)
To just watch the video without the introduction, please click below:
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First Update From Dianna (Physics Girl)
Dianna Cowern, also known as “The Physics Girl” after her massively successful YouTube channel, wants people to know about the disease ME/CFS. In May 2025, Dianna Cowern updates us on her journey and recovery following a Covid infection in Autumn of 2023. Dianna reveals that she’s made progress and beginning to be able to enjoy some limited activities. Whilst she is recovering, she parallels the continued severe suffering of her friend Tobias Schweikert who lives in Germany, reminding us that so much more needs to be done worldwide for those who continue to suffer, with no end in sight.
Kyle (Dianna’s Husband): “It’s been over two years of being sick essentially approaching two years of like bed bound her quality of life is unimaginably low right now still she can’t get out of bed she can’t clean herself she can’t take a shower she can’t…”
Derek Muller (Veritasium): “I think the thing that’s shocking to me as well is like this lack of ability to have anything really to occupy your mind right like it’s not like she can’t really read or audio books or movies.”
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Fatigue, Mitochondria and the Energy Puzzle
The latest video from Dr. Sanjay Gupta shows true compassion for those suffering from ME, Long Covid and POTS. More selected videos from Dr. Sanjay Gupta can be found here.
Fatigue, Mitochondria and the Energy Puzzle
Dr. Sanjay Gupta explores mitochondrial dysfunction as a cause for unexplained long term fatigue, brain fog, post-exertional malaise and temperature dysregulation
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Doctors As Patients
YouTube Movie has been released exposing the experience of five doctors living with ME, Long Covid, Lyme Disease and other related conditions. The video is not primarily narrated in English, but has English Subtitles.
“Five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands but possibly worldwide! They speak candidly about their experiences with illness, what they were taught (or not taught) in medical school, and how that shaped their own treatment decisions—sometimes even leading to harm. They reflect on how becoming patients themselves radically changed their views on medicine, science, and what needs to change in healthcare. It’s raw, honest, and incredibly insightful—for medical professionals, researchers, politicians, and patients alike.”
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The Latest Research on Mitochondrial Dysfunction in Long Covid & ME/CFS | With Prof. Klaus Wirth
Gez Medinger talks with Prof. Klaus Wirth about his research into Mitochondrial Dysfunction, particularly in relation to intramuscular sodium levels. He reassures us that intramuscular sodium levels are not influenced by additional salt intake typically used to increase blood volume, for those suffering from orthostatic intolerance or POTS.
Part 2 looks at use of a potential new drug, referred to as MDC002:
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BBC Look North Evening Show with Dr Alexis Gilbert and Binita Kane
BBC Look North Evening Show. Dr Alexis Gilbert who has #LongCovid and has also been diagnosed with #MECFS and interview with Dr @BinitaKane
Adam’s Broken Battery YouTube Channel here as well as his TV and Radio Clips library here
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Long Covid Clinic – What You Can Do
Harry Leeming introduces the Visible App and wearable armband
Harry Leeming introduces the Visible App monitoring and wearable armband, allowing daily symptom tracking, morning Heart Rate Variation measurement (even without the armband) and with the armband, continuous Heart Rate monitoring and Pace Point scoring.
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Movie – Chronically Ill, Chronically Ignored
Release Details:
Released in Germany and France on 25th February 2025 on Arte TV. We are awaiting details of more international releases.
Read More “Movie – Chronically Ill, Chronically Ignored”