Harry Leeming introduces the Visible App monitoring and wearable armband, allowing daily symptom tracking, morning Heart Rate Variation measurement (even without the armband) and with the armband, continuous Heart Rate monitoring and Pace Point scoring.
Professor Deepa Mann-Kler Director & Producer introduces an award winning 6-minute, animated video that shares the voices of, and the insights into, the lives of 6 people living with Myalgic Encephalomyelitis in Northern Ireland. It places the viewer into real life scenarios that are normally never seen, heard or experienced. This narrows the gap between an individual’s preconceived beliefs and real personal experience. It can be viewed via a 3D, virtual reality headset for maximum experience (directly arranged by contacting the Charity), or as a normal 2D video via this YouTube link.
Produced between Hope 4 ME & Fibro Northern Ireland, Silverink, and Neon. To date, it has won 4 international short film awards.
To just watch the video without the introduction, please click below:
Extracts from full Mayo Clinic Article Originally published in October 2023. Selected text and images only included below see full article link at end of page
Concise review for clinicians Volume 98, Issue 10, p1544-1551, October 2023: Stephanie L. Grach, MD, Jaime Seltzer, MS, Tony Y. Chon, MD, Ravindra Ganesh, MD, MBBS
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease
often preceded by infection. There has been increased interest in ME/CFS recently
because of its significant overlap with the post-COVID syndrome (long COVID or post-acute
sequelae of COVID), with several studies estimating that half of patients with post-COVID
syndrome fulfill ME/CFS criteria. Our concise review describes a generalist approach to
ME/CFS, including diagnosis, evaluation, and management strategies.
(c) 2023 THE AUTHORS. Published by Elsevier Inc on behalf of Mayo Foundation for Medical Education and Research. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/) n Mayo Clin Proc. 2023;98(10):1544-1551
YouTube Movie has been released exposing the experience of five doctors living with ME, Long Covid, Lyme Disease and other related conditions. The video is not primarily narrated in English, but has English Subtitles.
“Five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands but possibly worldwide! They speak candidly about their experiences with illness, what they were taught (or not taught) in medical school, and how that shaped their own treatment decisions—sometimes even leading to harm. They reflect on how becoming patients themselves radically changed their views on medicine, science, and what needs to change in healthcare. It’s raw, honest, and incredibly insightful—for medical professionals, researchers, politicians, and patients alike.”
Gez Medinger talks with Prof. Klaus Wirth about his research into Mitochondrial Dysfunction, particularly in relation to intramuscular sodium levels. He reassures us that intramuscular sodium levels are not influenced by additional salt intake typically used to increase blood volume, for those suffering from orthostatic intolerance or POTS.
Part 2 looks at use of a potential new drug, referred to as MDC002:
BBC Look North Evening Show. Dr Alexis Gilbert who has #LongCovid and has also been diagnosed with #MECFS and interview with Dr @BinitaKane
Adam’s Broken Battery YouTube Channel here as well as his TV and Radio Clips library here
The American Journal of Respiratory and Critical Care Medicine has posted a new abstract authored by David Systrom et al, which evaluated invasive CPET testing. The test includes iCPET results from 438 ME/CFS patients, 73 Long Covid patients, and 43 symptomatic but otherwise normal controls.
The measurement method is illustrated here from their previous 2023 report [TBA]
The full Abstract within the American Journal of Respiratory and Critical Care Medicine can be found here: https://www.atsjournals.org/doi/abs/10.1164/ajrccm.2025.211.Abstracts.A7881
An image extract from the article is shown below, showing correlation of pVO2 between each cohort and outcomes, and remarkably similar results from ME and Long Covid:
