Capacity

Guidelines | ME Summaries | Movies | Videos

Professor Deepa Mann-Kler Director & Producer – Introduces the Discover M.E. Film
BySteve 25 September 202525 September 2025

Professor Deepa Mann-Kler Director & Producer introduces an award winning 6-minute, animated video that shares the voices of, and the insights into, the lives of 6 people living with Myalgic Encephalomyelitis in Northern Ireland. It places the viewer into real life scenarios that are normally never seen, heard or experienced. This narrows the gap between an individual’s preconceived beliefs and real personal experience. It can be viewed via a 3D, virtual reality headset for maximum experience (directly arranged by contacting the Charity), or as a normal 2D video via this YouTube link.

Produced between Hope 4 ME & Fibro Northern Ireland, Silverink, and Neon. To date, it has won 4 international short film awards.

Discover M.E. Film (no Introduction)

To just watch the video without the introduction, please click below:

Read More Professor Deepa Mann-Kler Director & Producer – Introduces the Discover M.E. Film
Guidelines | Symptom Management | Symptoms | Training | Treatment

Bateman Horne Clinical Care Guide for ME/CFS, Long COVID & Infection-Associated Chronic Conditions
BySteve 9 May 202510 May 2025

Released as version 1.0 today, a new and outstandingly comprehensive reference guide for both Doctors and Health Care Workers. The reference guide we needed 20 years ago! This certainly feels like an essential training reference:

“A Roadmap to Better Care:
Clinical Care Guide for ME/CFS, Long COVID &
Infection-Associated Chronic Conditions

Developed by the OMF-supported Medical Education Resource Center (MERC) at Bateman Horne Center, this resource offers a practical path forward—one grounded in clinical expertise, research, and the lived experience of patients”

https://batemanhornecenter.org/clinical_roadmap

Clinical-Care-Guide-First-Edition-2025-1

Direct link to download the guide PDF

Read More Bateman Horne Clinical Care Guide for ME/CFS, Long COVID & Infection-Associated Chronic Conditions
Health Services | Symptom Management | Symptoms | Treatment | Videos

Fatigue, Mitochondria and the Energy Puzzle
BySteve 5 May 2025

The latest video from Dr. Sanjay Gupta shows true compassion for those suffering from ME, Long Covid and POTS. More selected videos from Dr. Sanjay Gupta can be found here.

Fatigue, Mitochondria and the Energy Puzzle

Dr. Sanjay Gupta explores mitochondrial dysfunction as a cause for unexplained long term fatigue, brain fog, post-exertional malaise and temperature dysregulation

Read More Fatigue, Mitochondria and the Energy Puzzle
Diagnostic Measurements | Research Papers | Symptoms

New Abstract on invasive CPET – Promising outcomes
BySteve 5 May 20255 May 2025

The American Journal of Respiratory and Critical Care Medicine has posted a new abstract authored by David Systrom et al, which evaluated invasive CPET testing. The test includes iCPET results from 438 ME/CFS patients, 73 Long Covid patients, and 43 symptomatic but otherwise normal controls.

The measurement method is illustrated here from their previous 2023 report [TBA]

The full Abstract within the American Journal of Respiratory and Critical Care Medicine can be found here: https://www.atsjournals.org/doi/abs/10.1164/ajrccm.2025.211.Abstracts.A7881

An image extract from the article is shown below, showing correlation of pVO2 between each cohort and outcomes, and remarkably similar results from ME and Long Covid:

Read More New Abstract on invasive CPET – Promising outcomes
Media

Six Myths and Facts Everyone Should Know About Myalgic Encephalomyelitis (ME)
BySteve 17 April 202517 April 2025

World ME Day 2025: Six Myths and Facts Everyone Should Know About Myalgic Encephalomyelitis (ME)

Read More Six Myths and Facts Everyone Should Know About Myalgic Encephalomyelitis (ME)
Research Papers | Videos

The Latest Research on Mitochondrial Dysfunction in Long Covid & ME/CFS | With Prof. Klaus Wirth
BySteve 23 March 202525 March 2025

Gez Medinger talks with Prof. Klaus Wirth about his research into Mitochondrial Dysfunction, particularly in relation to intramuscular sodium levels. He reassures us that intramuscular sodium levels are not influenced by additional salt intake typically used to increase blood volume, for those suffering from orthostatic intolerance or POTS.

Part 2 looks at use of a potential new drug, referred to as MDC002:

Read More The Latest Research on Mitochondrial Dysfunction in Long Covid & ME/CFS | With Prof. Klaus Wirth
Research Papers

FUNCAP – Accurately assessing Functional Capacity in patients with PEM
ByAdmin 16 February 202531 May 2025

Read More “FUNCAP – Accurately assessing Functional Capacity in patients with PEM”

Read More FUNCAP – Accurately assessing Functional Capacity in patients with PEM

Discover M.E. Film (no Introduction)

Fatigue, Mitochondria and the Energy Puzzle