Disability

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    Doctors As Patients

    BySteve

    YouTube Movie has been released exposing the experience of five doctors living with ME, Long Covid, Lyme Disease and other related conditions. The video is not primarily narrated in English, but has English Subtitles.

    “Five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands but possibly worldwide! They speak candidly about their experiences with illness, what they were taught (or not taught) in medical school, and how that shaped their own treatment decisions—sometimes even leading to harm. They reflect on how becoming patients themselves radically changed their views on medicine, science, and what needs to change in healthcare. It’s raw, honest, and incredibly insightful—for medical professionals, researchers, politicians, and patients alike.”

  • Norwegian study shows – ME patients rarely return to work

    BySteve

    What can wage development before and after a G93.3 diagnosis tell us about prognoses for myalgic encephalomyelitis?

    A Norwegian study has shown that patients diagnosed with ME typically decline permanently in terms of their earning capabilities, as illustrated below by the drop in their average wage income over a period starting 9 years before diagnosis in 2016, until 9 years later in 2025. Less than 6% maintained an income of at least median wages after diagnosis.

    Nine years before diagnosis, the men earned slightly less than their controls. Wages in the men’s groups then started falling sharply towards Y0 and continued falling in the first year after (Y1). They then fell more gradually towards Y9. The women’s average wages 9 years before diagnosis were slightly below their female controls. The wages fell more sharply between 2 years before and 1 year after diagnosis, where they stabilized at a low level.

    Fig. 3. Comparing group average wages for men and women 18–67 years old, diagnosed with G93.3, from 9 years before until 9 years after diagnosis (N = 6249) using 2009–2018 data to simulate values for the control group (N = 2739).

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