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Guidelines | ME Summaries | Movies | Videos
Professor Deepa Mann-Kler Director & Producer – Introduces the Discover M.E. Film
Professor Deepa Mann-Kler Director & Producer introduces an award winning 6-minute, animated video that shares the voices of, and the insights into, the lives of 6 people living with Myalgic Encephalomyelitis in Northern Ireland. It places the viewer into real life scenarios that are normally never seen, heard or experienced. This narrows the gap between an individual’s preconceived beliefs and real personal experience. It can be viewed via a 3D, virtual reality headset for maximum experience (directly arranged by contacting the Charity), or as a normal 2D video via this YouTube link.
Produced between Hope 4 ME & Fibro Northern Ireland, Silverink, and Neon. To date, it has won 4 international short film awards.
Discover M.E. Film (no Introduction)
To just watch the video without the introduction, please click below:
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Bateman Horne Clinical Care Guide for ME/CFS, Long COVID & Infection-Associated Chronic Conditions
Released as version 1.0 today, a new and outstandingly comprehensive reference guide for both Doctors and Health Care Workers. The reference guide we needed 20 years ago! This certainly feels like an essential training reference:
“A Roadmap to Better Care:
Clinical Care Guide for ME/CFS, Long COVID &
Infection-Associated Chronic ConditionsDeveloped by the OMF-supported Medical Education Resource Center (MERC) at Bateman Horne Center, this resource offers a practical path forward—one grounded in clinical expertise, research, and the lived experience of patients”
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New Abstract on invasive CPET – Promising outcomes
The American Journal of Respiratory and Critical Care Medicine has posted a new abstract authored by David Systrom et al, which evaluated invasive CPET testing. The test includes iCPET results from 438 ME/CFS patients, 73 Long Covid patients, and 43 symptomatic but otherwise normal controls.
The measurement method is illustrated here from their previous 2023 report [TBA]
The full Abstract within the American Journal of Respiratory and Critical Care Medicine can be found here: https://www.atsjournals.org/doi/abs/10.1164/ajrccm.2025.211.Abstracts.A7881
An image extract from the article is shown below, showing correlation of pVO2 between each cohort and outcomes, and remarkably similar results from ME and Long Covid:
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Norwegian study shows – ME patients rarely return to work
What can wage development before and after a G93.3 diagnosis tell us about prognoses for myalgic encephalomyelitis?
A Norwegian study has shown that patients diagnosed with ME typically decline permanently in terms of their earning capabilities, as illustrated below by the drop in their average wage income over a period starting 9 years before diagnosis in 2016, until 9 years later in 2025. Less than 6% maintained an income of at least median wages after diagnosis.
Nine years before diagnosis, the men earned slightly less than their controls. Wages in the men’s groups then started falling sharply towards Y0 and continued falling in the first year after (Y1). They then fell more gradually towards Y9. The women’s average wages 9 years before diagnosis were slightly below their female controls. The wages fell more sharply between 2 years before and 1 year after diagnosis, where they stabilized at a low level.
Fig. 3. Comparing group average wages for men and women 18–67 years old, diagnosed with G93.3, from 9 years before until 9 years after diagnosis (N = 6249) using 2009–2018 data to simulate values for the control group (N = 2739).
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