Tessa Munt, officer of the APPG for ME, announced that 100% Liberal Democrat MPs have now signed a letter urging Wes Streeting and Ashley Dalton to back the ME/CFS Delivery Plan with the funding required to properly implement it.
Tessa Munt – “I’m so delighted that all 72 LibDem MPs signed this letter to @wesstreeting @AshleyDalton_MP asking the govt to back the ME/CFS Delivery Plan with the resources it deserves. May this be a huge encouragement to the ME community and the start of meaningful change. #WorldMEDay”
Vital Long Covid Clinics Closing Across the UK Despite Ongoing Need, New Research Warns
A study by Long Covid Support and Long Covid Kids has unveiled alarming gaps in Long Covid care, revealing that numerous specialist services across the UK are either shutting down or facing imminent closure. Despite NHS England confirming funding for Long Covid services through 2025/26, Freedom of Information (FOI) requests and direct communications with service providers indicate that many are already closing or operating under uncertainty.
This report explores the experiences of people with Long Covid in the UK in using NHS services. It views these experiences within the context of uncertainty around the future funding model from NHS England and the fragmented approaches to Long Covid care in the devolved nations. We use information from a number of sources to challenge the view that it is appropriate to de-prioritise specialist Long Covid services in the UK.
Who this report is for This report is intended for policymakers and government departments, including Department for Health and Social Care (DHSC), Department for Work and Pensions (DWP), Department for Education (DfE), the Health Select Committee, health secretaries, and the All-Party Parliamentary Group (APPG) on Long Covid. It is also relevant to National Health Service (NHS) health authorities such as NHS England, individual healthcare boards in
This is a long read, but you have everything here. The “Hidden demand” figure on page 47 says for the Derbyshire case study shows that less demand for services isn’t the reason the services are closing down.
The latest video from Dr. Sanjay Gupta shows true compassion for those suffering from ME, Long Covid and POTS. More selected videos from Dr. Sanjay Gupta can be found here.
Fatigue, Mitochondria and the Energy Puzzle
Dr. Sanjay Gupta explores mitochondrial dysfunction as a cause for unexplained long term fatigue, brain fog, post-exertional malaise and temperature dysregulation
Cease any changes to PIP eligibility that would reduce access for those in genuine need. Maintain inflation-linked increases to ensure PIP keeps pace with the cost of living. Conduct a transparent and meaningful consultation with disabled people and advocacy groups before implementing any reforms.
We stand against policies that put financial strain on disabled individuals and demand fair, compassionate, and well-evidenced reform.
Sign this petition to protect the rights and support of disabled people in the UK.
YouTube Movie has been released exposing the experience of five doctors living with ME, Long Covid, Lyme Disease and other related conditions. The video is not primarily narrated in English, but has English Subtitles.
“Five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands but possibly worldwide! They speak candidly about their experiences with illness, what they were taught (or not taught) in medical school, and how that shaped their own treatment decisions—sometimes even leading to harm. They reflect on how becoming patients themselves radically changed their views on medicine, science, and what needs to change in healthcare. It’s raw, honest, and incredibly insightful—for medical professionals, researchers, politicians, and patients alike.”
