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Bateman Horne Clinical Care Guide for ME/CFS, Long COVID & Infection-Associated Chronic Conditions
Released as version 1.0 today, a new and outstandingly comprehensive reference guide for both Doctors and Health Care Workers. The reference guide we needed 20 years ago! This certainly feels like an essential training reference:
“A Roadmap to Better Care:
Clinical Care Guide for ME/CFS, Long COVID &
Infection-Associated Chronic ConditionsDeveloped by the OMF-supported Medical Education Resource Center (MERC) at Bateman Horne Center, this resource offers a practical path forward—one grounded in clinical expertise, research, and the lived experience of patients”
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All 72 Liberal Democrat MPs back resourcing of ME/CFS Delivery Plan
Tessa Munt, officer of the APPG for ME, announced that 100% Liberal Democrat MPs have now signed a letter urging Wes Streeting and Ashley Dalton to back the ME/CFS Delivery Plan with the funding required to properly implement it.
Tessa Munt – “I’m so delighted that all 72 LibDem MPs signed this letter to @wesstreeting @AshleyDalton_MP asking the govt to back the ME/CFS Delivery Plan with the resources it deserves. May this be a huge encouragement to the ME community and the start of meaningful change. #WorldMEDay”
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Fatigue, Mitochondria and the Energy Puzzle
The latest video from Dr. Sanjay Gupta shows true compassion for those suffering from ME, Long Covid and POTS. More selected videos from Dr. Sanjay Gupta can be found here.
Fatigue, Mitochondria and the Energy Puzzle
Dr. Sanjay Gupta explores mitochondrial dysfunction as a cause for unexplained long term fatigue, brain fog, post-exertional malaise and temperature dysregulation
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New Abstract on invasive CPET – Promising outcomes
The American Journal of Respiratory and Critical Care Medicine has posted a new abstract authored by David Systrom et al, which evaluated invasive CPET testing. The test includes iCPET results from 438 ME/CFS patients, 73 Long Covid patients, and 43 symptomatic but otherwise normal controls.
The measurement method is illustrated here from their previous 2023 report [TBA]
The full Abstract within the American Journal of Respiratory and Critical Care Medicine can be found here: https://www.atsjournals.org/doi/abs/10.1164/ajrccm.2025.211.Abstracts.A7881
An image extract from the article is shown below, showing correlation of pVO2 between each cohort and outcomes, and remarkably similar results from ME and Long Covid:
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Doctors As Patients
YouTube Movie has been released exposing the experience of five doctors living with ME, Long Covid, Lyme Disease and other related conditions. The video is not primarily narrated in English, but has English Subtitles.
“Five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands but possibly worldwide! They speak candidly about their experiences with illness, what they were taught (or not taught) in medical school, and how that shaped their own treatment decisions—sometimes even leading to harm. They reflect on how becoming patients themselves radically changed their views on medicine, science, and what needs to change in healthcare. It’s raw, honest, and incredibly insightful—for medical professionals, researchers, politicians, and patients alike.”
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Disabled, Discharged and Disappearing from View
By Long Covid Support and Long Covid Kids
Vital Long Covid Clinics Closing Across the UK Despite Ongoing Need, New Research Warns
A study by Long Covid Support and Long Covid Kids has unveiled alarming gaps in Long Covid care, revealing that numerous specialist services across the UK are either shutting down or facing imminent closure. Despite NHS England confirming funding for Long Covid services through 2025/26, Freedom of Information (FOI) requests and direct communications with service providers indicate that many are already closing or operating under uncertainty.
This report explores the experiences of people with Long Covid in the UK in using NHS services. It views these experiences within the context of uncertainty around the future funding model from NHS England and the fragmented approaches to Long Covid care in the devolved nations. We use information from
a number of sources to challenge the view that it is appropriate to
de-prioritise specialist Long Covid services in the UK.Who this report is for
This report is intended for policymakers and government departments, including Department for Health and Social Care (DHSC), Department for Work and Pensions (DWP), Department for Education (DfE), the Health Select Committee, health secretaries, and the All-Party Parliamentary Group (APPG) on Long Covid.
It is also relevant to National Health
Service (NHS) health authorities such as NHS England, individual healthcare boards inThis is a long read, but you have everything here. The “Hidden demand” figure on page 47 says for the Derbyshire case study shows that less demand for services isn’t the reason the services are closing down.
View the full report online here:
Disabled, Discharged and Disappearing from View
The slides presented online are now included below:
The slide pack is also available here
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Trial By Error: A 2015 Letter from the Countess of Mar to Suzanne O’Sullivan
Commentary TBA. Full article linked below: